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Pediatric (Childhood) MS

Young Persons with MS: A Network for Families with a Child or Teen with MS

Young Persons with MS: A Network for Families with a Child or Teen With MS (formerly Children with MS: North American Family Support Network) is a support network that provides multiple program options for families living with a child or teen who has been diagnosed with multiple sclerosis. Although MS historically has been viewed as an adult-onset disease, a small population of children and teens also live with this unpredictable disease and the Society recognizes the great need for support, education and public awareness.

This program is a collaborative effort between the National MS Society and the MS Society of Canada. Together we recognize the unique needs of these children and realize that their parents and siblings may need a variety of support services and programs.

The network targets two distinct populations:

  • Children with MS (18 years and younger)
  • Parents of a child or teen with MS

To learn more about the Network for Families programs or services, please call 1-866 KIDS-W-MS (1-866-543-7967). For US residents you may also contact your local Society chapter (toll free: 1-800-344-4867).

The Network currently offers the following to children and teens with MS and their parents:

  • Parents Handbook
    Kids Get MS Too: A Guide for Parents Whose Child or Teen has MS, is an informational handbook containing a wide range of information pertaining to pediatric MS. The handbook was written by specialists in childhood MS.

  • Teleconferences
    Teleconferences, featuring specialists in the field of pediatric MS, are offered for parents. Topics typically relate to research, treatment, cognitive issues, and rights within the school system.

  • Email Group for Parents
    The Network connects parents through an email list serve group where they can share concerns and information, and develop a support network.
support

Young Persons with MS: A Network for Families with a Child or Teen with MS

Contact the Program Coordinator
Toll free:
1-866-KIDS-W-MS
(1-866-543-7967)
or send an e-mail to childhoodms@nmss.org.

U.S. residents can also
contact your Society chapter. 1-800-344-4867



Mighty Special Kids
A 20-page activity book for kids with MS

Mighty Special Kids book Games, activities, and age-appropriate articles to help children better understand what MS means. To order, call
1-866-KIDS-W-MS.

GO Mighty Special Kids: Interactive Version

Gold—WWW Health Awards

Pediatric MS Study Group

  • Increase knowledge of pediatric MS
  • Increase awareness of pediatric MS
  • Provide increased services for children and parents

Read more about the Pediatric MS Study Group

 
  • Email Group for Teens
    The Network also connects teens through an email group especially for them. The group allows teens to "meet" other teens, share concerns and information, and develop a support network. The group is moderated by a National MS Society staff member.

  • Telephone Support Group for Teens
    Beginning in February 2006, the Network will offer a time-limited telephone support group for teens with MS. This is not a counseling group, but will provide teens with a safe environment to share their thoughts and concerns about living with MS. The group will be lead by a young person with MS, and moderated by a National MS Society staff member.

  • Mighty Special Kids—An Activity Book for Children with MS
    This activity book is for children ages 5-12 with MS. The book includes educational games, activities, and age appropriate articles to help children better understand their diagnosis. The activity book is also available in an interactive version.

  • Information and Referral
    Parents can receive information about MS and local resources from the chapter in their area. For information specific to pediatric MS, please contact the Program Manager at 1-866-KIDS-W-MS (1-866-543-7967) or email childhoodms@nmss.org.

Registration Information
For more information, to request copies of our publications, or to register for the Network, contact the Program Manager at 1-866-KIDS-W-MS (1-866-543-7967) or email childhoodms@nmss.org.

 

For more information...

 
Last updated March 29, 2006
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