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Living with MS

For People Newly Diagnosed

If you or someone close to you has recently been given a diagnosis of multiple sclerosis, you probably have a lot of questions and concerns. Or, you may be feeling so overwhelmed by the diagnosis that you aren’t sure what kinds of questions to ask. The National MS Society has developed programs to give you the information and support you need to live comfortably and confidently with this change in your life.

Knowledge is Power

Knowledge Is Power
An at-home educational series for people newly diagnosed with MS

 

An Introduction to MS

 

Living with MS
Addresses questions frequently asked after diagnosis of MS is received-from possible causes to advice on coping

 
 Disclosure—The Basic Facts
Discusses whom, when, and how to tell in both personal and work situations; includes personal vignettes
 
"But You Look So Good!"
Coping with invisible MS symptoms
 
Someone You Know Has MS: A Book for Families
For children ages 6 to 12 who have a parent with MS. Provides facts and explores children's fears and concerns
 
F.A.Q. About Society-Funded MS Research
Frequently asked questions about Society-funded MS research, including funding, approach, philosphy, and progress
 
Treatments
Various treatments are available to help reduce future disease activity and/or manage symptoms. Talk to your doctor about what's right for you.
 

National MS Society Disease Management Consensus Statement
Early treatment recommendations regarding use of the current MS disease-modifying drugs

 

The Disease-Modifying Drugs
Information on the disease-modifying drugs (Betaseron, Avonex, Copaxone, Novantrone, Rebif, and Tysabri). Includes how each is taken, side effects, benefits, and available help

 
Visit our Treatments section for more on medications, symptom management, alternative therapies, and treating exacerbations (relapses)
 
  • Choosing the Right Health-Care Provider
  • MS Care Treatment Team
  • Treatment Locations
  •  
    Employment
     
    MS and Employment
    These programs and materials will assist you in making informed career decisions

    Mike Zimits "I started telling people close to me that I had MS. This was a huge weight off my shoulders." Meet Mike Zimits

    Sharon DodgeWhen Sharon Dodge was diagnosed, she and her family joined the fight against MS. Meet Sharon

    Magazines
       
    Momentum cover Momentum (formerly InsideMS)
    The magazine of the National MS Society
       
     

    For Kids
    Keep S'myelin—our newsletter for children

     

    Meruka Gupta

    Meruka Gupta—"I thought MS was an immediate sentence to a wheelchair, and having been very athletic all of my life, this terrified me. However, I very quickly realized that this was not the case. I was just beginning my life, and I was not going to allow MS to end it." Meet Meruka

    Researchers need YOU!
    People newly diagnosed with MS during 2007 are urgently needed for participation in a study of MS and quality of life. Early results from this study have increased our knowledge of MS, helping researchers understand the many factors that affect disease course. Get more information on how to join (PDF)

    Read more about the Sonya Slifka Longitudinal MS Study

    support icon Support

    Connect with others whose lives are affected by MS

    There are over 1,800 National MS Society-affiliated self-help groups across the nation representing people with MS, family members, and friends. Contact your chapter to find out more.
    1-800-344-4867

    MSWorld offers the official National MS Society chat rooms and message boards with a hosted chat on Wed. at 8:00 pm EST specifically to answer questions and concerns for those just learning about MS.

     

    Basic Facts

    Just the Facts
    Frequently asked questions about MS and the National MS Society

    Myths about MS
    Clearing up some mis-conceptions you may have heard about MS

    Glossary of MS Terms

    webcast icon Webcasts
    (transcripts available)

    MS Learn Online presents

    Newly Diagnosed with MS

    Where Do I Begin?

       
    Starting with the Basics

    The Facts on MS

    The Clinical Courses in MS

    Learn more about these and other webcasts

    Books
     
    The First Year—Multiple Sclerosis: An Essential Guide for the Newly Diagnosed The First Year—Multiple Sclerosis: An Essential Guide for the Newly Diagnosed
    by Margaret Blackstone
    Read our review | Order through Amazon.com
    Multiple Sclerosis For Dummies

    Multiple Sclerosis For Dummies
    by Rosalind Kalb, Nancy Holland, Barbara Giesser
    Order through Amazon.com

    Multiple Sclerosis: A Guide for the Newly Diagnosed, 2nd Edition

    Multiple Sclerosis: A Guide for the Newly Diagnosed, 3rd Edition
    by Nancy Holland, T. Jock Murray, Stephen Reingold
    Order through Demos Publishing*

    Multiple Sclerosis: Questions and Answers Multiple Sclerosis: Questions and Answers
    by David Barnes, Ian McDonald

    Order through Amazon.com
    Multiple Sclerosis: The Questions You Have—The Answers You Need Multiple Sclerosis: The Questions You Have—The Answers You Need, 3rd Edition
    by Rosalind C. Kalb

    Order through Demos Publishing*
    Multiple Sclerosis Q&A: Reassuring Answers to Frequently Asked Questions Multiple Sclerosis Q&A: Reassuring Answers to Frequently Asked Questions
    by Beth Ann Hill

    Read our review | Order through Amazon.com

    Video

    “But You Look So Well …”

    “But You Look So Well …”
    Produced by Geyer/Lindenmuth Productions
    Focuses on several people newly diagnosed with MS—people who have no visible sign of the disease. VHS. 60 minutes.
    To order: Contact audreygeyer@aol.com,
    (810) 225-7796

     
    *All orders placed on Demos Publishing web site receive a 15% discount from list price.
     
    Last updated November 20, 2007
    FAQsGlossary of MS Terms  


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