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Living with MS

Progressive MS

Four disease courses have been identified in MS, of which three are characterized as “progressive.” The majority of people are diagnosed with a relapsing-remitting course, characterized by acute relapses that come and go with no disease progression in between. Of these, most will transition at some point to a course that is more consistently progressive with fewer or no relapses (secondary-progressive MS). 

A small percentage of people have a progressive course right from the beginning and never experience any relapses (primary-progressive MS), or experience an occasional relapse along the way (progressive-relapsing MS). Read more on the four courses of MS

Symptom Management and Treatments

 
For Caregivers
   
MS and Home Caregivers MS and Home Caregivers
Information, resources, and support for those caring for someone with MS

Staying Healthy

Life Planning

Research

Clinical Trials
For individuals with MS who want to participate in clinical trials of new or experimental forms of therapy, or studies that evaluate or compare approved medications for MS

Books

Meeting the Challenge of Progressive Multiple Sclerosis

Meeting the Challenge of Progressive Multiple Sclerosis
by Patricia K. Coyle, MD, June Halper, MSN, ANP
Order through Demos Publishing*

Yes, You Can!!! Yes, You Can!!! Go Beyond Physical Adversity and Live Life to Its Fullest
by Janis Dietz, PhD
Order through Demos Publishing*
The Chronic Illness Workbook: The Chronic Illness Workbook: Strategies and Solutions for Taking Back Your Life
by Patricia A. Fennell, MSW, CSW-R
Order through Amazon.com
Waist-High in the World: A Life Among the Nondisabled Waist-High in the World: A Life Among the Nondisabled
by Nancy Mairs
Order through Amazon.com
As For Tomorrow, I Cannot Say: 33 Years with Multiple Sclerosis As For Tomorrow, I Cannot Say:
33 Years with Multiple Sclerosis
by Diana Neutze
Order through Amazon.com
Safety Travel & Etiquette Tips Safety Travel & Etiquette Tips:
For Pedestrians on Wheels

by Michael Creurer
Order through SFC Inc.

 

 

George McAleer

George McAleer

"Is my wheelchair going to slow me down? Yes."

"Stop me? Not a chance!"

Meet George and read his message about exercise


webcast icon Webcasts
(transcripts available)
MS Learn Online presents
Tips for Making Life Easier
Feeling Alone With Progressive MS
Shelley's Story - Living Independently Around the House
Help: Asking For, Accepting and Giving Back
Staying Involved and Connected
Progressive MS

Treatments and Research

Long Term Care Services

Loss, Grief, Adaption
Physical Fitness From Home
Exercise Options for People with Progressed MS
Exercise Options for People with Full Mobility

Learn more about these and other webcasts

 

Julia GrahamJulia Graham—
How I cope with progressive MS

So You Have
Progressive MS?
"The past 11 years have had highs, lows, tears, laughter, change, and, well, life. I doubt that anyone describing any 11 year period would say anything different, MS or not."
Read more

Just Dance!
If the sound of music makes you want to jump up and dance, but the effects of MS make that impossible, wheelchair dancing may be the answer.

You CAN...Save Grace if you FALL
Tips on how you can retain your composure and dignity if you fall.



support icon Support

Connect with others whose lives are affected by MS

Contact your chapter to find out about self-help support groups, counseling, equipment assistance, long-term care facilities, and more.

 
*All orders placed on Demos Publishing web site receive a 15% discount from list price.
 
Last updated February 15, 2008
FAQsGlossary of MS Terms  


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