MS Advocacy
|
Date |
User Response |
|---|---|
| 04/23/2013 | User Provided No Response |
| 01/06/2011 | User Provided No Response |
| 08/10/2013 | User Provided No Response |
| 08/10/2013 | User Provided No Response |
| 07/17/2011 | User Provided No Response |
| 02/12/2009 | User Provided No Response |
| 10/11/2013 | User Provided No Response |
| 07/13/2011 | User Provided No Response |
| 07/02/2014 | User Provided No Response |
| 05/06/2014 | User Provided No Response |
| 07/01/2014 | Insurance coverage |
| 11/21/2009 | User Provided No Response |
| 12/28/2009 | User Provided No Response |
| 05/19/2009 | User Provided No Response |
| 05/27/2009 | Under Obama, stem cell has been approved. I know a lot of research has focused on pills instead of injection & this is good news. But I support ANYTHING that stem cell can discover about MS. It is a truly HORRIBLE disease but I am hopeful there will be a cure in my life time. I am 64 and was diagnosed in 1989. Unfortunately, I can do virtually nothing because of my condition |
| 05/27/2009 | Under Obama, stem cell has been approved. I know a lot of research has focused on pills instead of injection & this is good news. But I support ANYTHING that stem cell can discover about MS. It is a truly HORRIBLE disease but I am hopeful there will be a cure in my life time. I am 64 and was diagnosed in 1989. Unfortunately, I can do virtually nothing because of my condition |
| 12/30/2008 | User Provided No Response |
| 08/09/2009 | User Provided No Response |
| 11/10/2011 | User Provided No Response |
| 05/19/2009 | User Provided No Response |
| 02/13/2009 | User Provided No Response |
| 06/23/2012 | User Provided No Response |
| 02/02/2009 | User Provided No Response |
| 05/20/2009 | Educating the general public about the ramifications of living with MS. Not only the individual with MS but also how family members and friends can be of help and understand better what the individual with MS is going thru. My sister has MS and it can be so frustrating at times because she was once so involved in physical activities but is now limited as to what she can do. She also has fallen twic and now has a serious shoulder injury. I Love my sister and we have been very close all our lives (we are both in our mid forties). I want to help out more, but she is sooo stubbron, it makes it difficult. I know there is no "book" on how to help, but I could use some more advise as how I can be of more help, without making my sister feel helpless. PS- she has a great husband and a family and friends that really care. |
| 01/27/2009 | User Provided No Response |
| 01/27/2009 | User Provided No Response |
| 05/19/2009 | User Provided No Response |
| 01/28/2009 | User Provided No Response |
| 01/28/2009 | User Provided No Response |
| 03/09/2013 | User Provided No Response |
| 03/09/2013 | User Provided No Response |
| 03/09/2013 | User Provided No Response |
| 11/30/2009 | User Provided No Response |
| 01/29/2009 | User Provided No Response |
| 11/14/2008 | I love policy! I'm a wonk! |
| 11/14/2008 | User Provided No Response |
| 01/28/2009 | User Provided No Response |
| 01/08/2009 | User Provided No Response |
| 01/13/2009 | User Provided No Response |
| 05/20/2009 | User Provided No Response |
| 01/27/2009 | User Provided No Response |
| 02/07/2012 | User Provided No Response |
| 02/10/2009 | User Provided No Response |
| 02/10/2009 | awareness, group counseling, meeting other MS'rs and care givers, helping those in need-especially those who do not have family/friends around them, self education |
| 02/12/2009 | Employee discrimination |
| 05/21/2009 | User Provided No Response |
| 10/14/2009 | User Provided No Response |
| 11/23/2009 | User Provided No Response |
| 11/24/2009 | User Provided No Response |
| 03/19/2014 | Adequate ways to put people with MS in touch with other people with MS so that they can share the high costs of living alone. |
| 03/18/2011 | User Provided No Response |
| 01/19/2012 | User Provided No Response |
| 01/12/2010 | User Provided No Response |
| 02/16/2012 | User Provided No Response |
| 05/15/2010 | Legal and financial from work related issues so others will have more information then I have had. |
| 11/12/2011 | I have MS, and frustating, seems nothing given as medication is working, changing Health INS, isn't helping me at all...I would like to know how to be in one of your resaarch ctr. to test medication that may help me...Can I be a canidate...Thanks much. |
| 04/08/2011 | User Provided No Response |
| 03/21/2011 | User Provided No Response |
| 01/07/2011 | User Provided No Response |
| 07/13/2011 | FIND THE CURE STOP with this money into meds that do not really help us crap!! |
| 11/11/2011 | User Provided No Response |
| 03/26/2011 | Natural pain management |
| 07/12/2012 | User Provided No Response |
| 01/13/2012 | User Provided No Response |
| 07/12/2012 | User Provided No Response |
| 02/09/2012 | My best friend died of Secondary cutaneous amyloidosis, which was a direct result of being bed ridden for nearly a year, due to complete paralysis. She was diagnosed with Primary Progressive MS, in June, 2010. She died in January, 2012. She had medical insurance provided by the state Government, and received poor medical care, over all. I would like to become involved in finding methods, or access to medical care and assistance for MS Patients with no insurance or MS Patients who are covered under Medicaid plans. Low Income Patients with MS should not have limited access to the medical community or poor quality provided medical care. As much as the National MS Society provides and helps patients and families of MS, I am not sure they realize how limited low income MS patients are in accessing proper care. I would like to somehow be involved in helping patients and families the care and services they need, when they are faced with poor quality care. |
| 09/11/2010 | User Provided No Response |
| 09/22/2011 | User Provided No Response |
| 07/01/2014 | User Provided No Response |
| 03/08/2012 | User Provided No Response |
| 07/30/2010 | User Provided No Response |
| 03/13/2014 | User Provided No Response |
| 07/12/2012 | User Provided No Response |
| 11/09/2012 | I am worried that the regulations for ssdi are not in a person with ms's favor. There needs to be a part of the insurance that covers ms. |
| 07/26/2012 | User Provided No Response |
| 03/15/2012 | User Provided No Response |
| 03/08/2013 | User Provided No Response |
| 05/17/2012 | User Provided No Response |
| 10/19/2012 | User Provided No Response |
| 04/04/2013 | User Provided No Response |
| 08/07/2012 | User Provided No Response |
| 09/24/2012 | User Provided No Response |
| 10/19/2012 | User Provided No Response |
| 11/13/2012 | User Provided No Response |
| 08/14/2012 | User Provided No Response |
| 08/21/2012 | User Provided No Response |
| 03/12/2014 | User Provided No Response |
| 11/08/2012 | Trying to find the cure, new medication, and FDA approval |
| 03/14/2014 | User Provided No Response |
| 09/17/2013 | User Provided No Response |
| 03/08/2013 | Please help those of us that are unable to pay for our medication. This economy has put my husband out of work and he was a general manager of two small casinos, but because of my MS I was unable to do my accounting work without pain and distractions. |
| 11/07/2013 | User Provided No Response |
| 04/30/2013 | User Provided No Response |
| 04/30/2013 | User Provided No Response |
| 04/30/2013 | User Provided No Response |
| 04/30/2013 | User Provided No Response |
| 04/30/2013 | User Provided No Response |
| 04/30/2013 | User Provided No Response |
| 04/30/2013 | User Provided No Response |
| 04/30/2013 | User Provided No Response |
| 04/30/2013 | User Provided No Response |
| 03/04/2013 | User Provided No Response |
| 03/04/2013 | User Provided No Response |
| 08/11/2013 | User Provided No Response |
| 09/14/2013 | Out reach for the MS community. Education and awareness for the MS community. |
| 08/12/2013 | User Provided No Response |
| 08/12/2013 | User Provided No Response |
| 05/10/2013 | User Provided No Response |
| 05/20/2009 | User Provided No Response |
| 07/11/2013 | User Provided No Response |
| 05/06/2014 | User Provided No Response |
| 05/11/2013 | User Provided No Response |
| 08/01/2014 | User Provided No Response |
| 07/11/2013 | User Provided No Response |
| 08/27/2013 | User Provided No Response |
| 08/28/2013 | all of the above are important to those with and without MS. What's important to me is to learn MS people, the beauty of Meditation. Please contact me. thank you |
| 11/08/2013 | User Provided No Response |
| 01/10/2014 | User Provided No Response |
| 11/11/2013 | Developing and establishing an MS Registry in the United States. Too many people do not understand the disease and there is no real data out there on how many people have it (an estimated 400,000+, but that's without regulated input). |
| 10/11/2013 | User Provided No Response |
| 10/04/2014 | User Provided No Response |
| 02/12/2009 | Employee discrimination |
| 07/13/2011 | User Provided No Response |
| 02/09/2012 | User Provided No Response |
| 06/10/2009 | User Provided No Response |
| 10/19/2012 | I am healthcare consultant, spending most of my time improving hospital financial performance. I would like to try to generate contributions to fund research and to support persons living with MS from hospital-related foundations and am trying to develop a ppt. presentation that focuses on the specific hospital's committee in terms of the local benefit and recognifition of the donor in the associated hospital's marketplace. From a benefits perspective, the local benefit is easy to demonstrate if the person suffering is willing to have their story told. The research benefit could be approaced in like manner. The recognition would be generalized and focus on the donor good work. I am hoping to find a resource to bounce ideas and help me put a presentation doc together that I can use for fundraising. Thanks. |
| 10/02/2014 | User Provided No Response |
| 05/19/2009 | User Provided No Response |
| 01/23/2014 | User Provided No Response |
| 02/04/2014 | User Provided No Response |
| 04/06/2011 | User Provided No Response |