2014 Bike MS Willamette Valley
We ride so we can make a difference!
Brie and Kevin have consolidated their fundraising under their daughter, Eleanor!
After a year of ups and downs for the four of us (including Eleanor and Monte!), this year’s “MS Season” is officially in the books with the close of BikeMS 2013..if only we could put a close on MS as easily.
The Ride: if you haven’t had the chance yet, please enjoy my tale of the bike weekend, at http://www.brieandkevin.com/bikeMS-KB. One word: incredible!
The Cause: I am proud and honored to let you know that because of your support Eleanor was the top fundraiser in the Oregon chapter with a final total of $38,388! We have never before seen such a varied mix of supporters come together, pushing us higher than ever:
All of you are dear friends with whom we are in debt for such wonderful support!.
34 other riders joined Eleanor on Team Amulet, raising a total of $58,542 towards our mutual goal: a world free of MS. This inspires us to keep fighting: fighting for Kevin's future and the future of everyone else affected by Multiple Sclerosis. I am grateful and humbled by your incredible support. Thank you.
We are putting the final touches on our 2013 thank you cards, coming soon to your mailbox!
The Future: the consensus among my healthcare team is that my MS has progressed from Relapsing Remitting to Secondary Progressive. What this generally means for me is that my current medications to treat attacks are no longer effective in limiting the progression of the disease. After 14 years, I am no longer on any disease modifying medications (my 14 year history including Avonex, Tysabri, Gilenya, and Rebif is over). Currently, there are no viable treatments available for Secondary Progressive MS. Over the next 2 months I will be finalizing enrollment into a clinical trial for a new treatment, called Tcelna. It’s a 2-year study with a lot of treatments and monitoring along the way.
For me, it’s a great opportunity to be part of groundbreaking success….
...and a great story for 2014’s BikeMS!
I am looking forward to keeping you up to date on our adventures!
With thanks and love
Kevin and Brie
The fight is not over and it won’t be over until a cure is found.
It will never stop…nor will we
It will never quit…nor will we
This is why we ride!