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Amanda Meyer - Blessed by God - Living with MS

Team Fundraising Goal: $20,000.00

Sunday August 17, 2008:
At the age of thirteen, I was misdiagnosed with ADEM, Acute Disseminated Encephalomyelitis and spent a week in the hospital. I continued to suffer unexplainable and random symptoms. I even had a Neurologist tell me that I was making everything up, that it was all in my head. Boy was it ever, just not the way that meant it. The summer between my Junior and Senior year I had lost the movement of the left side of my face for the second time and my left eye turned in. I had another MRI and was admitted into the hospital later that afternoon. I was fortunate enough to get a new Neurologist that specialized in Pediatric Multiple Sclerosis. She's awesome! I spent four days in the hospital and was released with answers to what I have been going through for the previous three and half years. Well I ended up back in the hospital four weeks later with my right arm and right leg almost paralyzed. This time I was given five days of steroids without improvement then three days of IVIg treatment, Intravenous immunoglobulin then sent home with a walker while I continue to heal. Some people have expressed an attitude of defeat and doom; others have expressed an attitude of praise and hope to our glorious God. I am thankful to finally have answers. I know that God has been, is, and always will be with me. I know that God has a purpose for everything I have gone through and everything that lies ahead. Even though there is not a cure right now for MS, I believe that God is more than able to do above all we can ever ask or think. I know that with enough money and research, a cure will be discovered. Until then I will stay strong, I will pick up my cross and run the race that is set before me.

Sunday August 24, 2008:
I want to thank all of you for your prayers! God has truly blessed me with so many amazing people in my life! I don’t know what I would do without all of you! (I just want to say especially to my mom and Jill, I really thought I was going to cry last night. You both are incredible women and your determination and strength inspire me to greater things. I love you both so much!) This past week has been spectacular! I met with my neurologist Wednesday and she said that overall I am on the right road for recovery. I started walking without my walker Friday morning and haven’t really needed it since. My left thumb and various spots on my left fingers are still numb, but other than that, it seems like I am returning to normal. At least as normal as I can be! I was joking with my parents yesterday; it seems like every time I start to clean my room or my desk I end up in the hospital Guess I just shouldn’t do it! Amen? This morning at church, just the presence of God left me breathless. This whole diagnosis has really opened my eyes to just a glimpse of how amazing God really can be. At first, my human nature just wanted to sulk in the pain and question God- How can this be? How can you do this to me? I am only 16 Why would you do this? But God opened my eyes and opened my heart to see that He has this under control and I have nothing to worry about. Whenever the smallest doubt starts to enter my mind I hear the gentle whisper ‘I’ve got you’ sometimes it’s almost as if I can feel his arms around me, ‘I’ve got you’. I know that God is dancing with such grace over my life that even though right now my circumstances my seem scary and ever so painful, when He is done with me, when He is finished with my life, it is going to be something so spectacular and beyond compare. My new favorite song by Francesca Battistelli- Beautiful, Beautiful says: Don’t know how it is You looked at me/ And saw the person that I could be/ Awakening my heart/ Breaking through the dark/ Suddenly Your grace/ Like sunlight burning at midnight/ Making my life something so/ Beautiful, beautiful/ Mercy reaching to save me/ All that I need/ You are so / Beautiful, beautiful. I know God is making my life something so so beautiful even though my situation may seem so scary, painful and uncomfortable if only I persevere. God’s love and his grace can be so evident if we let it. Any circumstance can be changed by the attitude in which we handle it.


Wednesday September 3, 2008:
September already? Wow! Time flies by so fast! I finally started school again on Monday- yet I still haven’t cleaned my desk! Last night my parents and I moved my bed back upstairs! Well, I can’t really take credit for moving my bed, I wimped out. I don’t have nearly the stamina or strength I used to. Today after school I will spend most of my time cleaning and organizing my room. I haven’t spent any time up there in probably two months. I was so happy to get out of the house finally on Friday to spend the night at my best friend Ashley’s house. We stayed up really late talking like every teenage girl and the conversation shifted to the dreaded subject of college and how at this time next year we are going to be apart and how sad that is going to be. Then I don’t think she felt the same way but I started freaking out more than being sad- I am going to be in a far away state, by myself, at college, in a new place, with a new disease, ALONE!!!! DID I MENTION ALONE???? I am still trying to master how to give myself these shots every other day and now I am going to go to another state, by myself to deal with this? Since Friday I have just been filled with this fear and doubt. All the time- It has been all I could think about- Consuming my mind. Last night I had a dream that was just bizarre. I was drowning in these rapids and there was no one to rescue me. I was completely alone. So when I woke up I just prayed ‘God what does this mean?’ God revealed to me this verse: “Fear not, for I have redeemed you; I have summoned you by name, you are mine. When you pass through the waters, I will be with you, and when you pass through the rivers, they will not sweep over you.” Isaiah 43:1,2 Now I just am filled with such a peace that I am God’s and when I get to college, wherever that may be, He will take care of me. He won’t leave me alone in the waters. He called me by name and I am His.

Monday September 8, 2008:
Today makes 2 months since I was diagnosed. It really doesn’t feel like 2 months. I can’t say that it feels any longer or shorter, just not really 2 months. I look back at all the blessings God has given my family and me over the past 2 months and how many people love me. It’s truly amazing!-I have officially decided what I want for my Make a Wish! After a lot of thought and prayer... I have decided on a specific laptop and camera- on top of that, I want them to find me a publishing company. I am going to make a book about my story and publish pictures in it (that I will take with my new camera) of the people and things that make my life Beautiful. God has given me such a huge platform right now at this moment in my life and how dare I pass it up!!!! I will have all the proceeds from my book go back to the Make a Wish Foundation and the National MS Society. God has blessed me with such a talent and passion for photography and I want to use that to help others. What a better way than to also touch someone’s life with my story as well? I was reading this last night and thought I should share it: You have made known to me the path of life; you will fill me with joy in your presence, with eternal pleasures at your right hand. Psalm 16:11 I love this verse, because the words so elegantly describe how God works. There are no words to depict the joy you feel when truly in God’s presence. I love how it says this-eternal pleasures. If my book can give people only a glimpse of how beautiful their life can be and the eternal pleasures that they can experience with an intimate relationship with Jesus Christ, than that is my ultimate wish.

Guest Book

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Charlotte Meyer
Sat, May 02, 2009
I am So proud of you Amanda! Raising money for MS research through your cause, MS Hair Today, Gone Tomorrow! You have been featured now on KFOR news and on KJ103 FM. I say it again, you are my Hero! Love you!

Dana McBride
Wed, Feb 11, 2009
Miss Amanda,
As you continue your struggles, always remember that even though friends don't always send cards, or phone you. That you are still in our thoughts and prayers. You are an amazing young woman, and I am proud to have gotten to know you over the past few months... Keep your faith, and we will keep praying.

Kathryn
Wed, Jan 28, 2009
Hey love,
You are such a beautiful person inside and out! I am so amazed at how strong your faith is and it is so inspiring to me. Everytime i read what you write i get tears in my eyes. God is usin you girl and it is so real. You are touching so many peoples lives. I love you and miss seeing you :)

Jeff Scott
Tue, Jan 20, 2009
Amanda, I work with your mother. I want you to know that my wife & I along with all our Life Group are praying for you. Your strength and attitude has been an inspiration to me in all you have been through. You are a hero in the truest meaning of the word. GOD is Good and will see you through all things. Keep GOD first and he will be there though all your struggles. See you back at the office soon!

Dalma Brown
Wed, Oct 22, 2008
Dear Amanda,
I am Ashley and Rachel's great-aunt in Dallas, and am holding you up in prayer during this time. You are such a courageous child of God, and I can tell that you have a wonderful relationship with the Lord. I will add your name to our Prayer List at church so all of the people can remember you in prayer. You are such a beautiful girl, and I'm so glad you, Ashley, and Rachel are good friends.
I know you love the Lord and His Word and that you will remember that you can stand upon all the promises in His Word.
Love,
Dalma Brown

LaDena Dosdall
Tue, Oct 21, 2008
Hi, Amanda. I've sent your mom a few messages of encouragement from us - just wanted to say a couple of things. First of all, we REALLY miss you guys. Second, you're turning out to be a wonderful woman of God that has such a beautiful testimony of God's grace and love through the tough times. Know that we have a lot of people interceding for you - not just for healing, but for strength and determination and peace through this journey of yours. Love ya.

Betty
Sat, Sep 27, 2008
Amanda, you truly are blessed with a gift for photography and writing. I can't wait to see the book you will publish and how it will be used for God's glory. You know the scripture says "If you delight yourself in the Lord he will give you the desires of your heart!" You are delighting yourself in the Lord, so you are surely going to have your desires!! I can't wait to see them come to pass. You are a wonderful young woman of God. Love your faith and Love you!

Ashley Longardner
Fri, Sep 26, 2008
Amanda, you have been awesome through all of this. God is performing some amazing things through your life right now! I saw this verse yesterday and it reminded me of you:
"I am greatly encouraged; in all our troubles my joy knows no bounds."
2 Corinthians 7:4

Joseph Meyer
Fri, Sep 26, 2008
Hey sis, I just wanted to let you know that even though I can't be there in Oklahoma, I'm still praying for you up here in Pittsburgh. The church up here is also praying for you. I miss you sis and I pray everyday that God will heal you and make everything better. I know he will.
Love you sissy.

Jill Henslee
Fri, Sep 26, 2008
Amanda, I wanted to let you know I am praying for you. You are such a strong young lady. God will bless you for what you are going through and the awesome attitude you have. (Just leave the flashlights at home.:} ) I will see you later this evening. Love you so much.
Jill

Charlotte Meyer
Tue, Sep 23, 2008
Well Amanda, you started steroids again yesterday. This time on an outpatient basis since your PIC line is still in place. This is your third relapse that waranted having IV steriods since July. God has BIG plans for you girl! He knows all who will be touched by you even the Nurse in the outpatient area... lol! I love you! Keep spreading God's love in all that you do!! Beautiful Beautiful

Lindsay Goodier
Tue, Sep 23, 2008
I'm so proud of you, Amanda. You have such an amazingly positive attitude, and such a bright future ahead of you. Jesus shines all over you! Thank you for sharing the verses you shared. I really love Psalm 16:11. You are being used by God, girl!

Ashley Longardner
Mon, Sep 08, 2008
That's awesome, Amanda. I am so proud of everything you've done these past couple of months. Thanks for letting me be a part of your life- it's incredible to watch God mold you and to see others effected by you.

Charlotte Meyer
Sat, Sep 06, 2008
You are amazing! I am So Proud of you and thrilled to see what God is doing in you. I love you!

Ashley Longardner
Wed, Sep 03, 2008
That is awesome Amanda! Just keep your mind open to God's word. I love the strength of your faith! You are a true God warrior.

Gary Herman
Tue, Sep 02, 2008
You may not remember me, but your folks will. My wife, Eileen, passed away January of 2007. But I am praying for you. May you continue to trust in God for all He has for you. Preparation for doing something for God is sometimes hard, but the rewards are great. Say hello to your parents for me.
Gary Herman

Tim & Kim Means
Tue, Sep 02, 2008
Though we are sorry you have to walk this road, we know that God has a purpose in everything. He will continue to shine through you as you trust in Him. He will get the glory and honor through your faith and trust in Him! What a wonderful example you are of how to depend fully on Him!
We love you and are praying for you!

Trevor Fullbright
Sun, Aug 31, 2008
Hey Amanda,
You have such amazing faith, and you are such an incredible person.
I'm praying for you everyday, and I'm here if you ever need anything.
Me and you need to hang out during school again while the suckers are in school, haha.

Channing Barker
Wed, Aug 27, 2008
Amanda!
What an amazing faith you have. I only wish to have a heart like yours one day. I was diagnosed with MS when I was 16 too. From Tulsa, Oklahoma I went through a lot of the same things you experienced. I will keep you in my prayers. Know that Christ has such a wonderful plan for you- something that none of us can even imagine. ISN'T THAT GREAT?! Such a great reason to smile...let's just bask in His glory. Let me get your address from you one day- I can send you the prettiest cane. My cane is pink but if you want another color, we can totally do that! Love you and love your love for life!

Shannon
Tue, Aug 26, 2008
Amanda, you are an amazingly brave young woman! Your beauty and wisdom is being brought out in an entirely new light through this huge challenge. I applaud you! Keep going girl! Love & prayers for continued strength & healing, Shannon

Rodney
Tue, Aug 26, 2008
Amanda,
Keep moving forward, keep growing and keep believing!
You are an inspiration and God is using you to impact many.
Thanks for mettle!
Rodney

Ginny
Mon, Aug 25, 2008
Amanda, Just seeing what you wrote in your blog and watching you find beauty for ashes in all of this is so amazing. You are so brave and full of faith and I am so incredibly proud of you!!! We love you.

Brooke Gilliland
Sun, Aug 24, 2008
We are praying for you every day! God has and IS doing something amazing in you. He will bless the attitude you have. You are amazing. We are lifting you up to Him for healing. God bless, hon.

Patty Rankin
Sat, Aug 23, 2008
Amanda, your story is amazing and I am so glad that your walking the walk and talking the talk. Your story is an inspiration and full of hope. Your story is impacting others each day and I know that without a doubt your life was meant to make a huge difference in this world. Keep on Truckin and showing the Glory of God and all his good works. Your loved and thought of often.
Love you and huge hugs!

Ashley Longardner
Fri, Aug 22, 2008
You're so amazing, Amanda! The marathon that is life has many things to sidetrack us and you are truly showing a Christian attitude through all of this. Many people are being and will be touched by your testimony. Keep the faith and always remember Jesus knows what He is doing. God is bigger than any of us and He is certainly bigger than MS! Continue to let the Holy Spirit minister to your spirit as life moves along. I love you!

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